Can you help researchers on questionnaires regarding
X-LINKED RETINITIS PIGMENTOSA
We need first language English speakers from Ireland or UK.
Patients
5 XLRP patients aged ≥ 18 years
5 XLRP patients aged 12-17 years
5 XLRP patients aged 8-11 years
8 caregivers of XLRP patients:
— 5 caregivers of 5-7 year-old patients, and,
— 3 caregivers of 3-5 or 7-11 year-old patients
€40 per participant.
- Can you check the questions in English of upcoming medical questionnaires related to the condition?
- Are the questions clear? Would you change any of the language?
- Would you add any questions?
- Is the layout ok? Would you change anything in this questionnaire?
- Want to make a real contribution to research?
-
Help assess the language of questionnaires for use in clinical settings
-
Help us check the quality of the English language of research questionnaires
This is a phone interview.
Adults and child participants (ages 5-17).
Payment of €40 per participant
Questionnaires last between 30 and 40 mins max. Approximate estimate.
Click here for Data protection and applicable privacy notice.
Consent forms will be required.
For further information or any questions email admin@trinityacademy.ie
or call Siobhan + 353 89 9752676.
or click here to take part LANGUAGE RESEARCH SUBMISSION
Can you help researchers on questionnaires regarding
ACHROMATOPSIA
-
5 ACHM patients aged ≥ 12 years (2/3 split of over- and under-18)
5 ACHM patients aged 8-11 years
8 caregivers of XLRP patients:
— 5 caregivers of 5-7 year-old patients, and,
— 3 caregivers of 3-5 or 7-11 year-old patients
We need first language English speakers from Ireland or UK
€40 per participant or €80 per pair of participants
- Can you check the questions in English of upcoming medical questionnaires related to the condition?
- Are the questions clear? Would you change any of the language
- Would you add any questions?
- Is the layout ok? Would you change anything in this questionnaire?
- Want to make a real contribution to clinical research?
-
Help us assess the language of questionnaires for use in clinical settings
-
Help us check the quality of the English language of research questionnaires
This is a phone interview.
Adults and child/teen participants (ages 8-17).
Payment of €40 per participant
Questionnaires last between 30 and 40 mins max. Approximate estimate.
Click here for Data protection and applicable privacy notice.
Consent forms will be required.
For further information or any questions email admin@trinityacademy.ie
or call Siobhan + 353 89 9752676
- or click here to take part LANGUAGE RESEARCH SUBMISSION