Language Research

Help Research into visual impairments

Click here to take part

Research into X linked Retinosa Pigmentitis

Can you help researchers on questionnaires regarding

X-LINKED RETINITIS PIGMENTOSA

We need first language English speakers from Ireland or UK.

Patients

5 XLRP patients aged ≥ 18 years

5 XLRP patients aged 12-17 years

5 XLRP patients aged 8-11 years

8 caregivers of XLRP patients:

— 5 caregivers of 5-7 year-old patients, and,

— 3 caregivers of 3-5 or 7-11 year-old patients

€40 per participant.

Can you check the questions in English of upcoming medical questionnaires related to the condition?
Are the questions clear? Would you change any of the language?
Would you add any questions?
Is the layout ok? Would you change anything in this questionnaire?
Want to make a real contribution to research?
Help assess the language of questionnaires for use in clinical settings
Help us check the quality of the English language of research questionnaires

This is a phone interview.

Adults and child participants (ages 5-17).

Payment of €40 per participant

Questionnaires last between 30 and 40 mins max. Approximate estimate.

Click here for Data protection and applicable privacy notice.

Consent forms will be required.

For further information or any questions email admin@trinityacademy.ie

or call Siobhan + 353 89 9752676.

or click here to take part LANGUAGE RESEARCH SUBMISSION

Research respondents from Australia/S.Korea needed

Can you help researchers on questionnaires regarding

ACHROMATOPSIA

5 ACHM patients aged ≥ 12 years (2/3 split of over- and under-18)

5 ACHM patients aged 8-11 years

8 caregivers of XLRP patients:

— 5 caregivers of 5-7 year-old patients, and,

— 3 caregivers of 3-5 or 7-11 year-old patients

We need first language English speakers from Ireland or UK

€40 per participant or €80 per pair of participants
- Can you check the questions in English of upcoming medical questionnaires related to the condition?
- Are the questions clear? Would you change any of the language
- Would you add any questions?
- Is the layout ok? Would you change anything in this questionnaire?
- Want to make a real contribution to clinical research?
- Help us assess the language of questionnaires for use in clinical settings
- Help us check the quality of the English language of research questionnaires
This is a phone interview.

Adults and child/teen participants (ages 8-17).

Payment of €40 per participant

Questionnaires last between 30 and 40 mins max. Approximate estimate.

Click here for Data protection and applicable privacy notice.

Consent forms will be required.

For further information or any questions email admin@trinityacademy.ie

or call Siobhan + 353 89 9752676
or click here to take part LANGUAGE RESEARCH SUBMISSION

Our experience in Linguistic Validation

Over the past 7 years we have conducted hundreds of patient-facing and phone assessments on research questionnaires for conditions such as:

Crohn’s Disease

Childhood cancer (80 UK participants)

Alzheimer’s

Ankylosing Spondylitis

Arthritis

Polymyalgia Rheumatica

Breast Cancer

Parkinson’s

Vision impairment (adult and paediatric)

General fatigue (adult and paediatric)

Eczema (adult and paediatric)

Clinical depression

Adult obesity

IBS

Asthma, PAH – paediatric pulmonary conditions

In conjunction with our trained interview team of language experts and linguists and a number of specialist clinicians, we have assisted researchers in testing patient-facing questionnaires to establish their validity before they are used in real clinical settings.

To this end, we hope we have in some small way assisted in the development of more successful treatments for many conditions.

We can carry out your Linguistic Validation projects in

Ireland, Northern Ireland and the UK.

For assistance with your linguistic validation research contact skelly@trinityacademy.ie